Exploring digital health care: eHealth, mHealth, and librarian opportunities
DOI:
https://doi.org/10.5195/jmla.2021.1180Keywords:
eHealth, mHealth, librarian roles, digital health technologyAbstract
Technology advances in eHealth and mHealth are changing the way that health care consumers and providers communicate, receive and deliver care, and access health information. As electronic health records and smartphones have become ubiquitous in the United States, opportunities and applications for the integration of eHealth and mHealth have increased. In addition to technology advances, the changing health care model is simultaneously adapting to and driving initiatives in digital health care. With these digital initiatives have come challenges, including data overload, security and privacy concerns, deficits in technological and health literacy skills, and sorting through the vast number of choices of digital applications. Navigating this changing landscape can be overwhelming and time consuming for both health care providers and consumers. Librarians are uniquely positioned to assist providers and consumers to break down barriers within the digital health care landscape through data management initiatives, technology and health literacy instruction, and finding and evaluating health information and digital health technologies.
References
Hoyt R, Hersh W, eds. Health informatics: practical guide. 7th ed. Columbia, SC: Informatics Education; 2018.
World Health Organization. eHealth [Internet]. [cited 2 Nov 2020]. <https://www.who.int/ehealth/en/>.
Krohn R, Metcalf D, Salber P. Connected health: improving care, safety, and efficiency with wearables and IoT solution. Boca Raton, FL: CRC Press; 2017.
Bushhousen E. Electronic health records and hospital librarians. J Hosp Libr. 2013;13:66-70.
Evans RS. Electronic health records: then, now, and in the future. Yearb Med Inform. 2016 May;Supp 1:48-61. DOI: http://dx.doi.org/10.15265/IYS-2016-s006.
Office of the National Coordinator for Health Information Technology. Health IT dashboard [Internet]. [rev. 17 Jun 2019; cited 29 Oct 2020]. <https://dashboard.healthit.gov/quickstats/quickstats.php#:~:text=In%202015%20over%204%20in,percentage%20has%20held%20through%202017>.
Office of the National Coordinator for Health Information Technology. ONC data brief no. 46: hospitals’ use of electronic health records data, 2015-2017 [Internet]. [2019 April; cited 29 Oct 2020]. <https://www.healthit.gov/sites/default/files/page/2019-04/AHAEHRUseDataBrief.pdf>.
Jones D, Shipman J, Plaut D, Seldon C. Characteristics of personal health records: findings of the Medical Library Association/National Library of Medicine joint electronic personal health record task force. J Med Libr Assoc. 2010 Jul;98(3);243-249.
Office for Civil Rights. Personal health records and the HIPPA privacy rule [Internet]. [cited 1 Nov 2020]. https://www.hhs.gov/sites/default/files/ocr/privacy/hipaa/understanding/special/healthit/phrs.pdf.
World Health Organization. mHealth: new horizons for health through mobile technologies: second global survey on eHealth. Global Observatory for eHealth series, volume 3 [Internet]. 2011. [cited 2 Nov 2020]. <https://www.who.int/goe/publications/goe_mhealth_web.pdf>.
Gleason A. mHealth- opportunities for transforming global health care and barriers to adoption. Journal of Electronic Resources in Medical Libraries. 2015;12(2):114-125. DOI: http://dx.doi.org/10.1080/15424065.2015.1035565.
Pew Research Center. Mobile technology and home broadband 2019 [Internet]. [cited 2 Nov 2020]. <https://www.pewresearch.org/internet/2019/06/13/mobile-technology-and-home-broadband-2019/>.
Dinh-Le C, Chuang R, Chokshi S, Mann D. Wearable health technology and electronic health record integration: scoping review and future directions. JMIR Mhealth Uhealth. 2019;7(9):e12861. DOI: http://dx.doi.org/10.2196/12861.
Lake E. The librarian’s role in digital health technology curation and promotion for a health care organization. J Electronic Resources Med Libr. 2018;15(2):71-76. DOI: http://dx.doi.org/10.1080/15424065.2018.1486261.
Piwek L, Ellis D, Andrews S, Joinson A. The rise of consumer health wearables: promises and barriers. PLoS Med. 2016;13(2):e1001953. DOI: http://dx.doi.org/10.1371/journal.pmed.1001953.
Vogenberg FR. US healthcare trends and contradictions in 2019. Am Health Drug Benefits. 2019 Feb;12(1):40-47.
Longtin Y, Sax H, Leape LL, Sheridan SE, Donaldson L, Pittet D. Patient participation: current knowledge and applicability to patient safety. Mayo Clin Proc. 2010 Jan;85(1):53-62. DOI: http://dx.doi.org/10.4065/mcp.2009.0248.
National Cancer Institute. HINTS 5 cycle 4 [dataset]. 2020. [cited 24 Jan 2021]. <https://hints.cancer.gov/view-questions-topics/question-details.aspx?qid=1606>.
Pew Research Center. Scenario: health information convenience and security [Internet]. [cited 2 Nov 2020]. <https://www.pewresearch.org/internet/2016/01/14/scenario-health-information-convenience-and-security/>.
Willis C, Gassaway J. Implementing a patient portal: the role of the hospital librarian. J Consum Health Internet. 2018;22(2):177-187. DOI: http://dx.doi.org/10.1080/15398285.2018.1451153.
Tarver T, Jones D, Adams M. The librarian’s role in linking patients to their personal health data and contextual information. Med Ref Serv Q. 2013;32(4):459-467. DOI: http://dx.doi.org/10.1080/02763869.2013.837730.
Office of the National Coordinator for Health Information Technology. Conceptualizing a data infrastructure for the capture, use, and sharing of patient-generated health data in care delivery and research through 2024 [Internet]. [2018 Jan; cited 2 Nov 2020]. <https://www.healthit.gov/sites/default/files/onc_pghd_final_white_paper.pdf>.
Loncar-Turukalo T, Zdravevski E, da Silv JM, Chouvarda I, Trajkovik V. Literature on wearable technology for connected health: scoping review of research trends, advances, and barriers. J Med Internet Res. 2019 Sep 5;7(9). <https://www.jmir.org/2019/9/e14017/>.
Kauw D, Huisma PR, Medlock SK, Koole MAC, Wierda E, Abu-Hanna A, Schijven M, Mulder B, Bouma B, Winter M, Schuuring M. Mobile health in cardiac patients: an overview on experiences and challenges of stakeholders involved in daily use and development. Pract Neurol. 2020 Oct;20(5):184–91. <https://innovations.bmj.com/content/6/4/184.abstract>.
Corbett M, Deardorff A, Kovar-Gough I. Emerging data management roles for health librarians in electronic medical records. J Can Health Libr Assoc. 2014;35:55-59. DOI: http://dx.doi.org/10.5596/c14-022.
Network of the National Library of Medicine. Data management guide [Internet]. [cited 2 Nov 2020]. <https://nnlm.gov/psr/guides/datamanagement>.
American Library Association. Keeping up with research data management [Internet]. 2018 Apr. [cited 2 Nov 2020]. <http://www.ala.org/acrl/publications/keeping_up_with/rdm>.
Research Data Management Librarian Academy. Research data management librarian academy: exploring and providing research data management training for librarians [Internet]. [cited 2 Nov 2020]. <https://rdmla.github.io/>.
Lake E, Steidinger S. Embedding library support into the electronic health record: key considerations when developing a new service. J Hosp Librariansh. 2020;20(1):56-63. DOI: https://doi.org/10.1080/15323269.2020.1705148.
Hansen J. Librarian consults through Epic: new opportunities for collaboration and education. Med Ref Serv Q. 2019;38(3):293-299. DOI: https://doi.org/10.1080/02763869.2019.1623610.
Volk R, Obeid N. What can we do about Dr. Google? Using the electronic medical record to prescribe reliable online patient education. J Med Libr Assoc. 2019;107(4):606-608. DOI: http://dx.doi.org/10.5195/jmla.2019.774.
Ladd D, Hurst E. Consumer health information provision: a workshop for librarians. J Consum Health Internet. 2018;22(3):217-228. DOI: https://doi.org/10.1080/15398285.2018.1513759.
Byambasuren O, Beller E, Glasziou P. Current knowledge and adoption of mobile health apps among Australian general practitioners: survey study. JMIR Mhealth Uhealth. 2019;7(6):e13199. DOI: http://dx.doi.org/10.2196/13199.
Lindsey M, Earl M. Consumer health mobile apps: opening the box. Tennessee Libraries. 2013;63(3):1.
Terry K. Prescribing mobile health apps: what to consider. Med Econ. 2015;(12):35-40.
Hemsley B, Rollo M, Georgiou, Balandin S, Hill S. The health literacy demands of electronic personal health records (e-PHRs): an integrative review to inform future inclusive research. Patient Educ Couns. 2018;101:2-15. <https://pdf.sciencedirectassets.com/271173/1-s2.0-S0738399116X00250/1-s2.0-S0738399117304238/main.pdf>.
Kim H, Xie B. Health literacy in the eHealth era: a systematic review of literature. Patient Educ Couns. 2017;100:1073-1082. <https://pdf.sciencedirectassets.com/271173/1-s2.0-S0738399116X00183/1-s2.0-S0738399117300150/main.pdf>.
Smith B, Magnani J. New technologies, new disparities: the intersection of electronic health and digital health literacy. Int J Cardiol. 2019 Oct 1;292:280-282. DOI: http://dx.doi.org/10.1016/j.ijcard.2019.05.066.
Bol N, Helberger N, Weert JCM. Differences in mobile health app use: a source of new digital inequalities? The Information Society. 2018 May; 34(3):183–93.
Sawaya J. Health literacy: the librarians’ tool to address health disparities. Public Libraries Online [Internet]. 2019 Mar 7. [cited 2Nov 2020]. <http://publiclibrariesonline.org/2019/03/health-literacy-the-librarians-tool-to-address-health-disparities/>.
Network of the National Library of Medicine. Health literacy initiative [Internet]. [cited 2 Nov 2020]. <https://nnlm.gov/initiatives/topics/health-literacy>.
Adler S. July 2020 Healthcare data breech report. HIPAA Journal [Internet]. [2020 Jan; cited 2 Nov 2020]. <https://www.hipaajournal.com/july-2020-healthcare-data-breach-report/#:~:text=There%20were%2026%20data%20breaches,had%20some%20business%20associate%20involvement>.
Banerjee S, Hemphill T, Longstreet P. Wearable devices and healthcare: data sharing and privacy. Inf Soc. 2018;34(1):49-57. DOI: http://dx.doi.org/10.1080/01972243.2017.1391912.
US Food and Drug Administration. Cybersecurity. [Internet]. [rev 22 Oct 2020; cited 2 Nov 2020]. <https://www.fda.gov/medical-devices/digital-health-center-excellence/cybersecurity>.
Adams Becker S, Cummins M, Davis A, Freeman A, Giesinger Hall C, Ananthanarayanan V, Langley K, Wolfson N. NMC horizon report: 2017 library edition [Internet]. The New Media Consortium; 2017. [cited 2 Nov 2020]. https://www.issuelab.org/resources/27498/27498.pdf.
