Mobilizing health equity through Computable Biomedical Knowledge (CBK): a call to action to the library, information sciences, and health informatics communities
DOI:
https://doi.org/10.5195/jmla.2024.1836Keywords:
Health Equity, Health Inequalities, Health Status Disparities, Computing Methodologies, Algorithms, Artificial Intelligence, Machine Learning, Library Science, Information ScienceAbstract
The twin pandemics of COVID-19 and structural racism brought into focus health disparities and disproportionate impacts of disease on communities of color. Health equity has subsequently emerged as a priority. Recognizing that the future of health care will be informed by advanced information technologies including artificial intelligence (AI), machine learning, and algorithmic applications, the authors argue that to advance towards states of improved health equity, health information professionals need to engage in and encourage the conduct of research at the intersections of health equity, health disparities, and computational biomedical knowledge (CBK) applications. Recommendations are provided with a means to engage in this mobilization effort.
References
Gravlee CC. Systemic racism, chronic health inequities, and COVID-19: A syndemic in the making? Am J Hum Biol. 2020 Sep;32(5):e23482. DOI: 10.1002/ajhb.23482.
Abbasi J. Taking a closer look at COVID-19, health inequities, and racism. JAMA. 2020 Aug 4;324(5):427-429. DOI: 10.1001/jama.2020.11672.
Devakumar D, Selvarajah S, Shannon G, Muraya K, Lasoye S, Corona S, Paradies Y, Abubakar I, Achiume ET. Racism, the public health crisis we can no longer ignore. Lancet. 2020 June27; 395(10242):2112-e113. DOI: 10.1016/S0140-6736(2)31371-4.
Egede LE, Walker RJ. Structural racism, social risk factors, and Covid-19 - A dangerous convergence for Black Americans. N Engl J Med. 2020 Sep 17;383(12):e77. DOI: 10.1056/NEJMp2023616.
Lynch J. Health equity, social policy, and promoting recovery from COVID-19. J Health Polit Policy Law. 2020 Dec 1;45(6):983-995. DOI: 10.1215/03616878-8641518.
Glover RE, van Schalkwyk MCI, Akl EA, Kristjannson E, Lotfi T, Petkovic J, Petticrew MP, Pottie K, Tugwell P, Welch V. A framework for identifying and mitigating the equity harms of COVID-19 policy interventions. J Clin Epidemiol. 2020 Dec;128:35-48. DOI: 0.1016/j.jclinepi.2020.06.004.
Berkowitz SA, Cené CW, Chatterjee A. Covid-19 and health equity - Time to think big. N Engl J Med. 2020 Sep 17;383(12):e76. DOI: 10.1056/NEJMp2021209.
Archer SL. Providing care for the 99.9% during the COVID-19 pandemic: How ethics, equity, epidemiology, and cost per QALY inform healthcare policy. Healthc Manage Forum. 2020 Sep;33(5):239-242. DOI: 10.1177/0840470420939854.
Ismail SJ, Tunis MC, Zhao L, Quach C. Navigating inequities: a roadmap out of the pandemic. BMJ Glob Health. 2021 Jan;6(1):e004087. DOI: 10.1136/bmjgh-2020-004087.
Mobilizing Computable Biomedical Knowledge (MCBK). MCBK Manifesto [Internet]. Department of Learning Health Sciences, University of Michigan Medical School [cited June 5, 2023]. https://mobilizecbk.med.umich.edu/about/manifesto.
Mobilizing Computable Biomedical Knowledge (MCBK). MCBK-North American Steering Committee. [Internet]. Department of Learning Health Sciences, University of Michigan Medical School [cited June 5, 2023]. https://mobilizecbk.med.umich.edu/.
Amara PS, Conte M, Flynn A, Platt J, Trinidad MG. Analysis of pioneering computable biomedical knowledge repositories and their emerging governance structures. Data Intelligence. 2022 July 1;4(3):653-670. DOI: 10.1162/dint_a_00148.
Platt JE, Solomonides AE, Walker PD, Amara PS, Richardson JE, Middleton B. A survey of computable biomedical knowledge repositories. Learn Health Syst. 2023 Jan.; 7(1): e10314. DOI: 10.1002/lrh2.10314.
PCBK: a public repository mobilizing Computable Biomedical Knowledge artifacts. Homepage. [Internet]. [cited Dec. 19, 2023], https://cbk.pub.
Knowledge Grid. Homepage. [Internet]. Medical School, University of Michigan [cited Dec. 19, 2023]. https://kgrid.org.
Mobilizing Computable Biomedical Knowledge (MCBK). Homepage. [Internet]. Department of Learning Health Sciences, University of Michigan Medical School [cited June 12, 2023]. https://mobilizecbk.med.umich.edu/.
Ndugga N, Hill L, Artiga S. COVID-19 cases and deaths, vaccinations, and treatments by race/ethnicity as of Fall 2022. KFF. [Internet]. Nov. 17, 2022. [cited June 12, 2023]. .
Lopez L, Hart LH, Katz MH. Racial and ethnic health disparities related to COVID-19. JAMA. 2021 Jan. 22; 325(8):719-20. DOI: 10.1001/jama.2020.26443.
Subbian V, Solomonides A, Clarkson M, Rahimzadeh VN, Petersen C, Schreiber R, Senathirajah Y. Ethics and informatics in the age of COVID-19. Challenges and recommendations for public health organization and public policy. JAMIA. 2021 Jan; 28(1):184-9. DOI: 10.1093/jamia/ocaa188.
O’Neil C. Weapons of math destruction: How big data increases inequality and threatens democracy. New York, NY: Crown; 2016.
Noble SU. Algorithms of oppression: How search engines reinforce racism. New York, NY: New York University Press; 2018.
Kantayya S. Coded Bias [documentary film]. 7th Empire Media [http://7thempiremedia.com]; 2020.
Walsh CG, Chaudhry B, Dua P, Goodman KW, Kaplan B, Kavuluru R, Solomonides A, Subbian V. Stigma, biomarkers, and algorithmic bias: Recommendations for precision behavioral health with artificial intelligence. JAMIA Open. 2020 Apr; 3(1):9-15. DOI:10.1093/jamiaopen/ooz054.
D’Olimpio, Laura. Ethics explainer: Ethics of care. The Ethics Centre. [Internet]. The Centre; May 16, 2019 [cited June 5, 2023]. https://ethics.org.au/ethics-explainer-ethics-of-care/.
Maio G. Fundamentals of an ethics of care. In: Care in healthcare: Reflections on theory and practice. Boldt J, Krause F, eds. Palgrave Macmillan 2018 [Internet]. [cited June 5, 2023]. https://www.ncbi.nlm.nih.gov/books/NBK543745/.
Mobilizing Computable Biomedical Knowledge (MCBK). MCBK Manifesto [Internet]. Department of Learning Health Sciences, University of Michigan Medical School [cited June 5, 2023]. https://mobilizecbk.med.umich.edu/about/manifesto.
Ferguson L, Coulter-Thompson E, Flynn A. Mobilizing Computable Biomedical Knowledge Conference – Oct. 18 and 19, 2017 – Conference overview. University of Michigan. Deep Blue (Repository) [Internet]. The University [cited June 5, 2023] https://deepblue.lib.umich.edu/handle/2027.42/140789.
Mobilizing Computable Biomedical Knowledge (MCBK). MCBK Manifesto [Internet]. Department of Learning Health Sciences, University of Michigan Medical School [cited June 5, 2023]. https://mobilizecbk.med.umich.edu/about/manifesto.
Mobilizing Computable Biomedical Knowledge (MCBK). MCBK-North American Steering Committee [Internet]. Department of Learning Health Sciences, University of Michigan Medical School [cited June 5, 2023]. https://mobilizecbk.med.umich.edu/.
Mobilizing Computable Biomedical Knowledge (MCBK). MCBK Manifesto [Internet]. Department of Learning Health Sciences, University of Michigan Medical School [cited June 5, 2023]. https://mobilizecbk.med.umich.edu/about/manifesto.
D’Olimpio, Laura. Ethics explainer: Ethics of care. The Ethics Centre [Internet]. The Centre; May 16, 2019 [cited June 5, 2023]. https://ethics.org.au/ethics-explainer-ethics-of-care/.
Williamson LD, Smith MA, Bigman CA. Does discrimination breed mistrust? Examining the role of mediated and non-mediated discrimination experiences in medical mistrust. J Health Commun. 2019;24(10):791-799. DOI: 10.1080/10810730.2019.1669742.
Cooper LA, Crews DC. COVID-19, racism, and the pursuit of health care and research worthy of trust. J Clin Invest. 2020 Oct 1;130(10):5033-5035. DOI: 10.1172/JCI141562.
Cuevas AG, O'Brien K. Racial centrality may be linked to mistrust in healthcare institutions for African Americans. J Health Psychol. 2019 Dec;24(14):2022-2030. DOI: 10.1177/1359105317715092.
Bajaj SS, Stanford FC. Beyond Tuskegee - Vaccine distrust and everyday racism. N Engl J Med. 2021 Feb 4;384(5):e12. DOI: 10.1056/NEJMpv2035827.
Armstrong K, Putt M, Halbert CH, Grande D, Schwartz JS, Liao K, Marcus N, Demeter MB, Shea JA. Prior experiences of racial discrimination and racial differences in health care system distrust. Med Care. 2013 Feb;51(2):144-50. DOI: 10.1097/MLR.0b013e31827310a1.
American Library Association. Committee on Professional Ethics. Code of ethics [Internet]. The Association [cited June 5, 2023]. https://www.ala.org/tools/ethics.
Medical Library Association. Code of ethics for health sciences librarianship [Internet]. The Association; updated June 2010 [cited June 5, 2023]. https://www.mlanet.org/page/code-of-ethics.
Mobilizing Computable Biomedical Knowledge (MCBK). MCBK Manifesto [Internet]. Department of Learning Health Sciences, University of Michigan Medical School [cited June 5, 2023]. https://mobilizecbk.med.umich.edu/about/manifesto.
Medical Library Association. Diversity, equity, and inclusion: Making MLA a more diverse and inclusive association [Internet]. The Association [cited June 5, 2023]. https://www.mlanet.org/page/diversity-and-inclusion-team.
Association of Academic Health Sciences Libraries. Diversity, equity and inclusion [Internet]. The Association [cited June 5, 2023]. https://www.aahsl.org/diversity-equity-inclusion.
Medical Library Association. Scholarly Communications Caucus [Internet]. The Association [cited June 5, 2023]. https://www.mlanet.org/page/scholarly-communications-caucus.
Association of Academic Health Sciences Libraries. Scholarly Communications Committee – Charge [Internet]. The Association [cited June 5, 2023]. https://www.aahsl.org/index.php?option=com_content&view=article&id=127.
Perry GJ., Roderer N, Assar S. A current perspective on medical informatics and health sciences librarianship. JMLA. 2005 Apr. 93(2):199-205. PMID: 15858622; PMCID: PMC1082936.
Itchhaporia D. The evolution of the Quintuple Aim: Health equity, health outcomes, and the economy. J Am Coll Cardiol. 2021 Nov. 30. 78(22):2262-2264. DOI: 10.1016/j.jacc.2021.10.018.
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Copyright (c) 2023 Nancy J. Allee, Gerald Perry, Gabriel R. Rios, Joshua C. Rubin , Vignesh Subbian, Deborah E. Swain, Terrie R. Wheeler
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